Impact

To all thalassemia patients receiving care in Canada: We want to hear about your experiences receiving care and living with thalassemia in order to help us effectively advocate for the needs of thalassemia patients. Your experiences can help us better understand the challenges and barriers thalassemia patients face and therefore, help to establish focused research…

We are extremely thankful to all Attendees, Speakers, Panelists, Sponsors, Volunteersand Organizers for the remarkable success and their contribution to towards a veryinformative 2-day virtual National Conference on Thalassemia hosted on Saturdayand Sunday October 23-24th , 2021 at 12:00-4:00 PM EDT. The goal of the conference is to empower patients and families through increasedknowledge on the most…

Thalassemia Foundation of Canada is delighted that #Bill 255, has passed 2nd reading at the Ontario Legislation on March 2nd.  The Thalassemia Community is extremely appreciative for the support of MPP Rudy Cuzzetto and MPP Andrea Khanjin for co-sponsoring the bill. Please read the press release. If passed, Bill 255 will recognize: Thalassemia Awareness Day…

Dear Friends and Supporters, We hope you are all keeping well and safe during these unprecedented times. Due to the ongoing COVID-19 pandemic, we had to postpone our annual Gala event this year. In lieu of this initiative, we have launched an online fundraising campaign. All of us at the Thalassemia Foundation of Canada are forever…

The Center for Maternal-Fetal Precision Medicine will host an online international conference on Alpha Thalassemia Major (ATM), which was once considered universally fatal in utero.  If left untreated, a fetus with ATM will develop severe anemia and hydrops and will die before or shortly after birth. However, recent evidence from patient registries has demonstrated that when…

The NRBDO is a pan-Canadian coalition of patient organizations representing people with rare blood disorders and/or people with a chronic condition who are recipients of blood or blood products or their alternatives. Together we work to educate and advocate for Canadians affected by rare blood disorders. Many innovative and curative therapies are coming to market…