Privacy Policy

1. Introduction

The mission of the Thalassemia Foundation of Canada (TFC) is to support and fund thalassemia scientific research, treatment, patient services, public awareness and education. Established in 1982, our foundation originally began as a small support group for parents and patients. Over the years, we have grown to a national organization with the support of dedicated volunteers and donors.

TFC is incorporated in Ontario, Canada. We are committed to protecting the privacy, confidentiality, and security of personal information entrusted to us.

This Privacy Policy explains how we protect personal information in accordance with applicable Canadian privacy laws, including the Personal Information Protection and Electronic Documents Act (PIPEDA).

3. Personal Information We Collect

We collect only personal information that is reasonably necessary for our activities, including:

• Name and contact information
• Professional credentials and practice information
• Membership details and payment information
• Event registration data

5. How We Use Personal Information

We use personal information to administer memberships, provide services, organize events, process payments, issue tax receipts, communicate with stakeholders, and meet legal and regulatory obligations.

7. Disclosure of Personal Information

We may disclose personal information to service providers, governing bodies, or regulatory authorities as required or permitted by law. Some service providers may be located outside Canada.

9. Retention

Personal information is retained only as long as necessary to fulfill identified purposes and legal requirements and is then securely destroyed or anonymized.

11. Cookies and Analytics

Our website uses cookies and similar technologies to improve functionality and understand usage. Browser settings may be adjusted to refuse cookies.

13. Contact Information