Bessie Calabria has lived her entire life with thalassemia, a rare inherited blood disorder that requires her to receive monthly blood transfusions. Over the years, she has depended on more than 2,000 blood donations, and each transfusion remains deeply meaningful to her. Seeing the bags of blood prepared for her care is a powerful reminder…

Living With Thalassemia  Angelina was diagnosed with thalassemia at the age of 2, when her mother took her to the hospital after she fainted at home. “That’s when my parents first became aware of my illness,” explains Angelina. Over the next several years Angelina was re-admitted to hospital numerous times, finally seeing a specialist when…

“Living an independent and successful life with thalassemia requires strength and resilience. These are the values my family instilled in me, and I continue to hold true to them today.” This is the message Amy shares with the people she meets as a longtime volunteer advocating for the needs of people who require life-saving treatment.…

Thalassemia is affecting a growing number of Canadians, but its treatment options needs more awareness. Thalassemia used to be confined to parts of the world where malaria was common, but changing immigration patterns are helping the disease see a growing prevalence amongst Canadians. The article ‘Patients With Thalassemia No Longer Dealt A Death Sentence’ is…

14th International Conference on Thalassaemia and Other Haemoglobinopathies & 16th TIF Conference for Patients and Parents (TIF International Conference) TIF’s International Conference constitutes the biggest educational event in the field of haemoglobin disorders organised on a global scale, comprise of two parallel Conferences, namely the 14th International Conference on Thalassaemia and Other Haemoglobinopathies & 16th…

This session being held on November 21 is for Thalassemia and Sickle Cell Disease patients who are considering attending a post-secondary institution and also for those who are already attending a post-secondary institution. Learn more about managing finances, educational pathways, time management, coping with assignments and stress. Discussions will also include apprenticeship programs, managing chronic…

On Saturday April 18, 2015, the Red Blood Cell Patient Forum will be held in Toronto. The forum developed by patients with Sickle Cell, Thalassemia and other red blood cell disorders to inspire and motivate patients to build resilience and develop leadership skills. To register or for more information, please contact Heather Gordon at [email protected]…

Red Blood Cell Patient Forum 2014 is being developed by patients with Sickle Cell, Thalassemia & other Red Blood Cell Disorders to inspire and motivate patients to build resilience and develop leadership skills. This is a unique event featuring educational presentations, visual & performing arts and a talent show. The topics to be addressed are:…